Lara Hermann
Ms Ines Hernando
EURORDIS - Rare Diseases Europe
ERN and Healthcare Director
Dr Oshrat Hershkovitz-Rokah
Ariel University/Assuta Medical Center
Head, Translational Research Lab
Ms. Clara Hervas
Edelman Global Advisory
Associate Vice President, Health & Well-Being Brussels
Mrs. Katharina Heuing
NAMSE Geschäftsstelle
Consultant
Dr Sinead Hickey
DEBRA Ireland
Research Manager
Dr Virginie Hivert
EURORDIS-Rare Diseases Europe
Therapeutic Development Director
Mr Johann Hochreiter
Lungfibrosis Forum Austria
Engineer
Professor Tony Holland
International Prader-Willi Syndrome Organisation
Emeritus Professor
Mrs Birthe Byskov Holm
Rare Diseases Denmark
President
Frau Ulrike Holzer
SHG Ektodermale Dysplasie/ ProRare Austria
Obfrau
Mr. Oscar Hongnat
INSERM
Data scientist
Mrs Eline Hoogstra
NLNet Dutch Lymphoedema Framework
Patient advocate
Mrs Monique Houck
Patient UDN
Patient
Mrs Sophie Housiaux
UCB
Head of Patient Engagement in Rare
Mr François Houÿez
European Organisation for Rare Diseases (Eurordis)
Director of Treatment Information and Access
Mr Brian Howard
EURORDIS- Rare Diseases Europe
Head of Philanthropy & Partnerships
Ms Kirsty Hoyle
Metabolic Support UK
CEO
Ms Hui-Ting Hsieh
Santen
Associate Director, Patient Advocacy Strategy
Mr David Hughes
Johnson & Johnson
Senior Manager Government Affairs & Policy
