Mr Sigurdur Johannesson
AHC federation of Europe
Treasurer
Dr. Kirsten Johnson
EURORDIS Board Member
Chair of the Board of Directors, The Fragile X Society
Mr Gavin Jones
OPEN Health
Global Advisor Rare Disease
Mrs Maria Jongma
HEVAS
President
Ms Joanna Joyce
Debra Ireland
Advocacy & Policy Manager
Ms Filipa Júlio
European Huntington Association
Project Manager
Dr Daria Julkowska
INSERM/EJP RD
EJP RD coordinator
Ms Claire Jumeau
APHP
project manager
Mrs Heidi Junnila
Finnish Association for Ultra Rare Diseases
Vice president
Mrs Stephanie Juran
Rare Diseases Sweden
project manager
Mrs. Iulia Jurca
RONARD - Romanian National Alliance for Rare Diseases
voluntar
Ms. Katrine Jürs
The Danish Medicines Council
Health Economist
Mrs Irena Juruk
Health Insurance Fund
Inspector
Mr. Andrej Juruk
Health Insurance Fund
Economist
Mr Nikolai Juul
Department of Pediatric Surgery, Copenhagen University Hospital Rigshospitalet, Denmark
Dr
Professor Helena Kääriäinen
Inclusion Finland KVTL
Research Professor
Mr. Kiprè Jean-Jacques Kakpeu
ONG VISION LIMPIDE
PROJECT MANAGER
Dr. Agate Kalcenaua
Longenesis
Medical Project Manager
Ms Taylor Kane
Remember The Girls
Executive Director
Mrs Svetlana Karimova
National Association of Organization of Patients with Rare Diseases "Genetics"
President
