Professor Encarna Guillén-Navarro
Hospital Clínico Universitario V. Arrixaca/IMIB-Arrixaca/UMU/CIBERER-ISCIII
Chief of Medical Genetics Section/Principal Investigator/Associate Professor
Mrs. Laura Gumbert
SMA Europe
Project manager
Dr Gulcin Gumus
EURORDIS- Rare Diseases Europe
Research and Policy Project Manager
Dr. Zsofia Gyulai
OGYEI
Clinical assessor
Mr. Trond Haagensen
TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital
Social worker
Dr. Juanita Haagsma
Erasmus MC University Medical Center
Assistant Profesdor
Mrs. Bine Haase
FSHD Europe
Board Member, Coordinator of Patient Interests
Mrs Juliane Halftermeyer
Inserm Transfert
Senior Project Manager
Dr. sci. Eva Hammar
University Hospitals of Geneva
Biologist and Coordinator
Mr. Marc Hanauer
INSERM - Orphanet
Orphanet Deputy Director - CTO
Mrs. Katerina Hanusova
Institute of health information and statistics
methodologist of clinical classifications
Ms Gudrun Helga Harðardóttir
Einstokborn - Support Group for Rare in Iceland
CEO and Family counseling
Ms. Simona Havriľaková
Comenius University in Bratislava, Faculty of Pharmacy
Student
Ms Victoria Hayes
Kyowa Kirin
Director of Public Affairs
Mrs Tanja Hedberg
The Swedish Cystic Fibrosis Association (& Primary Ciliary Dyskinesia)
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Ms Victoria Hedley
Newcastle University
Rare Disease Policy Manager
Mr Gerrit Heijkoop
LiveOnlineEvents (LOE)
Mr. Red Sneakers | Online Host
Mr Risto Heikkinen
Finnish Allergy, Skin and Asthma Federation
Senior Specialist
Ms Anja Helm
Eurordis
Senior Manager of Relations with Patient Organsiations
Mr Con Hennessy
OpenApp
CEO
