Mrs Anne Hugon
AFG et ERN ITHACA
Vice Prés Fondatrice AFG - Cheffe projet ERN ITHACA
Mr. Andrii Hulei
Pulmonary Hypertension Ukrainian Rare Disease Association-PHURDA
Lawyer
Dr Amy Hunter
Genetic Alliance UK
Director of Research
Mrs Marine Hurard
EURORDIS- Rare Diseases Europe
Governance Manager
Ms Alison Hyland
DEBRA Ireland
Research Assistant
Mrs Albina Hyseni-Bocolli
CCI Europe
Project Coordinator
Mr. Shinya Iimura Shinya Iimura
Takeda Pharmaceutical Company Limited
Lead, Global Health, Global Public Affairs
Ms Jessica Imbert
MedTech Europe
Director External Affairs
Mrs. Streata Ioana
Romanian National Alliance for Rare Diseases
volunteer
Mrs. Camelia Isaic
HAE Junior patient organisation
Chairwoman
Mr. Georgi Iskrov
Institute for Rare Diseases (Bulgaria)
Project Manager
mr John Ivory
Sanofi
Head of Europe Rare Diseases
Ms Marta Jacinto
Associação Pseudoxantoma Elástico Portugal
President
mrs Gunilla Jaeger
Ågrenska
Senior Advisor
Dr. Nadeesha Prasangi Jayasekara
Teaching hospital Kurunegala, Sri Lanka
Registrar in Paediatrics
Mrs Patricia Jeandel
AMMi
member
Mrs Rebecca Jenner
Rett UK
President (voluntary role)
Ms. Lene Jensen
Rare Diseases Denmark
CEO
Mr. Christian Jervelund
Copenhagen Economics
Partner
Mrs. Lijun Jin
Rare Disease and Orphan Drugs Journal
Managing Editor
