Ms Anna Kole
EURORDIS- Rare Diseases Europe
Public Health Policy Director
Mrs Anna Korecka-Polak
Agency for Health Technology Assessment and Tariff System (AOTMiT)
Consultant
Mrs. Malgorzata Kosla
PACS2 Research Foundation
President
Mr. Michael Kossmeier
Federation of Social Insurances
Statistician
Dr Evgenia Koutsouki
EMG-Health
Editor
Mrs Annekatrin Krause
Novartis
Patient Engagement Director Global Functions
Dr. Maria Krivega
Women Hospital of University of Heidelberg, Germany
Group Leader
Mrs. Sarka Kubinova
State Institute for Drug Control
medical evaluator
Mrs Gabriela Kucerakova
Takeda
Patient Advocacy Lead
Dr Nathalie Kucharczyk
ConcepTrial
Clinical Research Consultant (and patient with CANVAS and trying to initiate a patient association in France)
Mrs Tatiana Kulesha
NGO “Rare diseases of Ukraine”
Chairman of the Board
Ms. Jenni Kuusela
The Finnish Association of People with Physical Disabilities
Planner
Prof Oleg Kvlividze
Georgian Foundation for Genetic and Rare Diseases (GeRaD)
CEO
Dr. Stelios Kympouropoulos
European Parliament
Member of the European Parliament
Ms Maria Kympouropoulos
European Parliament
Personal Assistant
Ms Stella Kyriakides
European Commission - DG Health and Food Safety
Commissionner
Ms Christina Kyriakopoulou
European Commission
Senior Policy officer
Mrs Liana la Forgia
A.C.A.R. Onlus (Associazione Conto Alla Rovescia)
Part Time Teacher
Mr. Terry Lai
Rare Disease Hong Kong
Business Development Officer
Mrs Jenni Laine
Sign Language Interpreter
Interpreter
