Prof Alessandra Ferlini
University of Ferrara
MD, PhD
Dr Elisa Ferrer-Mallol
Aparito Ltd
Patient Advocacy Manager
Mrs Sam Fillingham
PIP-UK Poland Syndrome Support and Network
CEO
Mr Alan Finglas
MSD Action Foundation
Research Manager
Ms Verity Fisher
National Star
National Lead for Healthcare and Physiotherapy Manager
Ms Hila Fishov
Assuta Medical Center
PhD student
Dr Ronan Fleming
Leiden University
Assistant Professor
Mrs. Eszter Fogarassy
HUFERDIS
Assistant
Mrs Tatiana Foltánová
Slovak Alliance for Rare Diseases
university assistant
Ms Susan Foster
EURORDIS- Rare Diseases Europe
HR Manager
Mrs Delphine Franchot
Sanofi
Rare Diseases Public Affairs
Dr Rita Francisco
EURORDIS-Rare Diseases Europe
Patient Engagement Junior Manager Healtcare/ ERNs
PhD Roser Francisco
Hospital Sant Joan de Déu de Barcelona
Head of tthe Clinical Accreditation Unit
Ms Kristina Franck
Norio-Centre of Rare Diseases, Inclusion Finland KVTL
Coordinator
Dr Kelly Cinthia Franco Bustamante
Instituto Nacional de Salud del Niño San Borja
medical genetist
Mrs Charissa Frank
Bindweefsel.be - Vlaamse Vereniging voor Erfelijke
ePAG ReCONNET/VASCERN, president bindweefsel.be
Miss Natalie Frankish
Genetic Alliance UK
Policy and Engagement Manager for Scotland
Mr. Christian Frenzel
PTC Therapeutics
Associate Director Patient Engagement EMEA & AP
Mrs Michaela Fux
Institute of Social and Preventive Medicine, University of Bern
Project Manager Swiss Rare Disease Registry
Mr Maciej Gajewski
ALEXION
Head International Government Affairs & Policy
