Mrs Florence Cocqueel
OrphanDev
Project Manager
Mrs Tanya Collin-Histed
International Gaucher Alliance
CEO
Ms. Alexandra Condurat
Patient
Researcher
Mrs Lucia Contofalska
Pag
Msl
Mrs Michelle Conway
Genetic Alliance UK
Genetic Alliance UK Policy Expert Volunteer (CRD Consulting)
Ms Clarissa Cooblall
ISPOR
Associate Director
Mr. Andrea Corazza
Biogen
Head of EU Liaison Office
Mr Ronald Cornet
Amsterdam UMC
Associate professor
Mr Alain Cornet
Eurordis / Lupus Europe
Treasurer
mrs Ambra Corti
Fondazione Telethon
Study coordinator
Ms Sandra Courbier
EURORDIS - Rare Diseases Europe
Social Research Director
Mme Danielle Cousein hiebel
Avenir APEI
Administrateur délégué à la santé
Mrs Mariana Coutinho
The EHE Rare Cancer Charity
Clinical Psychologist/Patient advocate
Mr Francesco Cremonesi
inria
Research Engineer
Ms Claudia Crocione
HHT Europe
Project Manager
Mr Adrian Croitoru
DMD Care Association
President
Mrs Kim Croskery
Ipsen Pharma SAS
Director Medical Rare Diseases
MS Grania Crowley
Ultragenyx
Patient Advocacy lead Europe
Ms Cláudia Cruz Oliveira
Erasmus MC University Medical Center
Research Master Student
Mrs Morgane Cuisenier
Novo Nordisk
Senior Public Affairs Manager
