Mrs Susana Carvajal Arjona
ERKNet
ERKNet ePAG Chair
Mr Manuel Casamayor
Asociación Gaucher de México
Contador
Ms Raquel Castro
SMA Europe
Senior Operations Manager
Ms. Maria Cavaller Bellaubi
EURORDIS - Rare Diseases Europe
Patient Engagement Manager
Mrs Helene Cederroth
Wilhelm Foundation
President
Mrs Anne-Sophie Chalandon
SANOFI
head global public affairs rare diseases policy
Dr. Chun-Hung Chan
Sanford Health
Research Development Partner
Mrs Charlotte Chanson
Orchard Therapeutics
Director, Diagnostics & NBS
Ms Amanda Chao
University College London
Policy Analyst
Ms Lara Chappell
EURORDIS- Rare Diseases Europe
Communications Director
Mr Periklis Charalampous
Erasmus MC University Medical Centre
Junior Researcher
Miss Pherrine Charles
Keele University
Student
Mr Kevin Cheeseman
French healthcare Network for endocrine rare diseases
Scientific manager
Ms Wing-yun Cheung
World Orphan Drug Congress
Director
Dr Federica Chiara
University of Padova /Linfa ODV
Assistant Professor PhD
Mr Giacomo Chiesi
Chiesi Farmaceutici Spa
Head of Global Rare Diseases
Mrs Zhana Chokheli
SCN2A Georgia
patient Advocate
Dr Violetta Christofidou Anastasiadou
Karaiskakio Foundation
Paediatrician - Clinical Geneticist
Mrs Melissa Clasen
Medics 4 Rare Diseases
Training and Education Officer
Miss Rachel Clayton
Genetic Alliance UK
Policy and public affairs officer
