Ms Zoi Anastasa
Vasculitis UK
Director of Operations
Mr. Terkel Andersen
EURORDIS- Rare Diseases Europe
President
Mrs Ammi Andersson
ERN ITHACA
ePAG
Ms. Emma Andersson
Association of Cancer Patients in Finland
Advocacy Specialist
Marcelo Adrian Marcelo Andrade
Sant Joan de Déu Children's Hospital
Peadiatrician
Mrs Saskya Angevare
Kaisz
Chair
Mrs Céline Angin
celine.angin@aphp.fr
BNDMR Project manager (French national RD registry)
Ms Leigh Ansell
Purple Agency
Medical Writer
Dr Victoria Antoniadou
Cyprus Alliance for Rare Disorders
Post-doc researcher
Mrs. Eleni Antoniou
Thalassaemia International Federation
Senior Policy Officer
Mrs. Anna Arellanesová
Rare Diseases Czech Republic
chair
Mr. Martin Arles
Orphanet Switzerland
Project Manager
Mr Alexander Artyomenko
Ipsen Pharma SAS
Patient Affairs Director Rare Diseases
Professor Alexis Arzimanoglou
ERN EPICARE
ERN EPICARE Coordinator
Mrs Annie Ashman
Public Health Wales
Specialty Registrar in Public Health
Mrs Sharon Ashton
EURORDIS
OA and Events Director
Mrs Fernanda Aspilche Ferro
Alpha-1 Plus
Patient advocate
Mrs Kirsi Asula
Finnish Neuro Society
Senior Planning Officer
Ms Maya Atanasoska
Sofia University "St. Kliment Ohridski"
Student
Mr Dimitrios Athanasiou
World Duchenne Organization / UPPMD
Board Member
