Mrs Marie-Claude Boiteux
Cutis Laxa Internationale
Chair
Mr Steve Bojakowski
GenSight Biologics SA
Patient Access and External Affairs Director
Mrs Amanda Bok
EHC
CEO
Mrs. Jamie Bolling
Independent Living Institute
Director
Mr Thomas Bols
PTC Therapeutics
Head of ga and pa, emea and apac
Mr Matthew Bolz-Johnson
EURORDIS / RDI
Healthcare Advisor
Mr Matthew Bolz-Johnson
Rare Diseases International
Programme Director
MR Andrea Bonetti
Chiesi
Head of Brussels Liaison Office
Mr Simone Boselli
EURORDIS- Rare Diseases Europe
Public Affairs Director
Dr Luisa Maria Botella Cubells
Public
Research Staff
Mrs Valentina Bottarelli
EURORDIS-Rare Diseases Europe
Public Affairs Director
Dr Nadia Bougacha
Agence du numérique en santé (French eHealth agency)
Alignments Projects manager | Interoperability consultant
Mrs. Sanne Bouwman
ParkinsonNet
Manager ParkinsonNet International
Prof. Daniela Braconi
aimAKU (Associazione Italiana Malati di Alcaptonuria)
Associate Professor of Biochemistry
Mrs Isabella Brambilla
Dravet Italia- ePAG EpiCARE- Dravet Syndrome European Federation
President
Mr Serge Braun
AFMTelethon
Scientific Director
Mr Rene Břečťan
Rare Diseases Czech Republic
vice-chair
Mr Sean Breen
Takeda
Head PPPs and Science Policy
Mr Joe Brice
Takeda
Head of Franchise Public Affairs & Policy, Europe & Canada
Dr Mark Briggs
Cardiff And Vale University Health Board
Assistant Director of Innovation
