Mr Johan de Graaf
Nederlandse Hypofyse Stichting
Chair
Mrs. Kimberley de Haseth
Chordoma Foundation
Program manager
Mrs Christine de Kalbermatten
MaRaVal - maladies rares valais - seltene krankheiten wallis
CEO
Mrs Hilde De Keyser
Cystic Fibrosis Europe
CEO
Mrs Hanka Dekker
Volwassenen Kinderen en stofwisselingsziekten VKS
Executive director
Mrs Martine Dekker
m.dekker@fibreuzedysplasie.eu
Bestuurslid
Mrs. Marta Del Alamo
ECRIN (European Clinical Research Infrastructure Network)
Project manager
Mr Julien Delaye
EURORDIS- Rare Diseases Europe
Public Health Policy Junior Manager
Dr Celine Delestrain
Centre de référence des maladies respiratoires rares de Créteil
DR
Florian Delval
Ms Elena C. de Moya Rubio
Marfan Hilfe (Deutschland) e.V.
ePAG Advocate, VASCERN HTAD ePAG Co-Chair
Mr Andrew Dempsey
UCB Pharma
Global Policy Community Lead - Rare Disease
Mrs Céline Desvignes
Mapi Research Trust
ERICA WP3 project manager
Mrs. Denise de Waal
ALAN Maladies Rares Luxembourg
Coordinatrice Alliance Nationale Maladies Rares
Mr Sergio Diaz
IQVIA
Patient Advocacy
Dr. Ruben Diaz
European Children's Hospitals Organisation (ECHO)
Secretary General
Ms Loredana Dicsi
European Disability Forum
Membership, Internal Communications & Youth
Mr. Toon Digneffe
TAKEDA
Head Public Affairs & Public Policy Europe & Canada
Mr Dante Di Iulio
Eucope AISBL
Comms Manager
Ms. Annamarie Dillon
Orchard Therapeutics
Patient advocacy
