Dr Androulla Eleftheriou
Thalassaemia International Federation
Executive Director
Mrs Imane Elgoumri
Eurordis
Compliance and Budget Manager
Miss Tabitha Elwell
Newcastle University
Data Coordinator
Ms. Sarah Emond
Institute for Clinical and Economic Review
EVP and COO
Dr. Shun Emoto
ASrid
Researcher
Pr Ralph Epaud
Centre référence des maladies respiratoires Rares (RespiRare-Site Créteil)
Head of CRMR (rare lung disease reference Centre) and CRCM (cystic fibrosis centre)
Ms Stephanie Ernst
Stichting TAPS Support
Founder and TAPS Nerd
Mr Joseph Even
ALAN Maladies Rares Luxembourg
Vice President ALAN MR
Mrs Pauline Evers
Ned Fed van Kankerpatientenorganisaties
Policy Advisor
Mrs Laurence Faivre
CHU Dijon
Professor in clinical genetics
Miss Marta Falcão
CDG & Allies — Professionals and Patient Associations International Network (CDG & Allies-PPAIN)
Student
Mrs Marie Helene Fandel
Sanofi
Senior Director
Ms Christina Fasser
Retina Suisse
Honorary President
Mrs Julia Faulkner
EAT - Esophageal ATresia Global Support Groups
Paediatric Dietitian
Mrs Gabriele Faust-Becker
Deutsche GBS CIDP Selbsthilfe
Vorstand
Ms Roseline Favresse
EURORDIS- Rare Diseases Europe
Research Policy & Initiatives Director
Mrs Francesca Fedeli
Fightthestroke Foundation
President
Mrs Shirley Feider
ALAN-Maladies Rares Luxembourg
President
Prof.dr. Wout Feitz
Radboudumc Amalia Children's Hospital
Professor of Pediatric Urology
Miss Beata Ferencz
Roche AB
Patient partner
