Mrs Rebecca Skarberg
OIFE
Advisor - Patient Involvement
Mr Graham Slater
EAT
Special Patient Advisor
Ms Eliza Slawther
APM Health Europe
Reporter
Mrs Rosanne Smits
Radboudumc
Researcher (Quality of Life in Rare Diseases)
Ms Olga Solomon
European Commission
Head Of Unit
Dr Suja Somanadhan
University College Dublin
Associate Professor
Miss Anna Somuyiwa
Centre for Innovation in Regulatory Science
Head
Mrs Ines Soua
Faculty of Medicine of Monastir, Tunisia
Medical resident
Mrs Oriana Sousa
Merakoi
Patient Coordinator
Mr Louis Soussand
Banque Nationale de Données Maladies Rares – BNDMR (AP-HP)
Senior Data Scientist
Ms Susan Spillane
HIQA
Head of Assessment
Mrs Claudia Sproedt
Cystinose-Selbsthilfe e.V. / ERN ERKNet
Board Member
Dr. Kim Staats
INmune Bio
Director of Rare Disease Drug Development
Mr. Stefan Staicu
Permanent Representation of Romania to the EU
Health attache
Ms. Ioana Stanculescu
Faculty of Psychology and Educational Sciences
student Instructional Design- Faculty of Psychology and Educational Sciences
Mrs Radiana Staynova
Department of Pharmaceutical Sciences, Faculty of Pharmacy, Medical University of Plovdiv
Senior assistant professor
Miss Jenny Steele
EURORDIS-Rare Diseases Europe
EU Public Affairs Senior Manager
Mrs. Nina Steinborn
Allianz Chronischer Seltener Erkrankungen e.V.
advisor for patients and relatives
Mr Patrick Stevens
DG Santé European Commission
External consultant
Mrs. Andrea Stoesz
andreaestoesz@gillettechildrens.com
Director - External Affairs
