Mrs Helen Stoop
Takeda
Head of Patient Advocacy - Europe and Canada
Dr Dr. Holger Erik Storcks
Kyowa Kirin GmbH
Director Public Affairs & Patient Advocacy DACH
Mrs Boryana Stoyanova
National Association of Patients with Mitochondrial Diseases in Bulgaria
Board Member
Mrs Petia Stratieva
Retina International/Retina Bulgaria
Policy Manager at Retina International
Mrs. Petia Stratieva
Retina international
Policy Manager
Mrs. Dominique Sturz
Usher Deafblind Austria; Pro Rare Austria
Patient Advocate
Mrs. Annakaisa Suominen
The Finnish Neuromuscular Disorders Association
Project Planner
Mr Jak Swain
Metabolic Support UK
Policy and Advocacy Lead
MR Jan Swiderski
Ipsen Pharma SAS
Public Affairs Director
Mrs Katarzyna Świeczkowska
Polish Assocciation for Persons with Intellectual Disability
Educator
Mr Dimitris Synodinos
Volunteer Patient Advocate
Ex member of BoDs
Mrs Eszter Szabo (in Hungarian Szabóné Katona)
Keregtest rendellenesseg AgCC Magyarorszagi Alapítványa (meaning Corpus Callosum Disorder Fundation Hungary)
Founder
Mrs Márta Szegedi
Semmelweis University
assisstant professor, clinical geneticist
Mrs. Nazi Tabatadze
MediClubGeorgia
Pediatrician
Mrs. Yelizaveta Tarasova
European parliament
Trainee
PhD Cihan Tastan
Uskudar University TRGENMER
Assis. Prof.
Mrs. Tina Taube
EFPIA
Director Market Access & Orphan Drug Policy Lead
MS Samantha Taylor
SAGE Publishing
Managing Editor
Ms Sarah Tecklenborg
Cystic Fibrosis Ireland
Senior Research and Policy Coordinator
Dr Enrique Terol
European Commission
Policy officer . Team leader Medical Service
