Mr. Lars Trivellato
Alexion, AstraZeneca Rare Disease
Commercial Data Analytics
Dr. Tim Turnham
VOZ Advisors
Vice President
Mr Vladymyr Tutuk
PO"UAP PKU "Special children"
supervisor
Ms Katerina Tzima
Duchenne Data Foundation
Administration and Communication Coordinator
Mrs. Katerina Uhlikova
ČAVO / Rare Diseases Czech Republic
vice-chairman
Ms Ursula Unterberger
National Office for Rare Diseases Austria
Medical consultant
Mrs Sheela Upadhyaya
FIPRA
Special Adviser
Ms Lena-Marie Urbanczyk
ERN-RND
Administrative Project Manager
Mr Marios Vakanas
Cyprus Association of Inherited Metabolic Diseases 'Aspida Zois'
President
Mrs Lyne Valentino
Centre Hospitalier Universitaire De La Guadeloupe
Ph
Dr Julie Vallortigara
Institute of Neurology, University College London
Research Fellow
Mr Olivier Vanakker
PXE Portugal
NA
Mrs Saskia van den Bogaert
Ministry of Health Belgium
Policy Advisor
Mrs Caroline van den Bosch
HEVAS
co chair VASCA WG in VASCERN/Board member HEVAS
Mr Lex van der Heijden
CMTC-OVM
President
Dr. Dirk Vander Mijnsbrugge
Pfizer
Vice President Medical Affairs International Developed Markets - Rare Disease
Mrs. Alexandra van der Staal
Medical University of Vienna
PhD Student, M.D.
Ms Marjolein van Kessel
Nevus Netwerk Nederland
Treasurer
Mrs Mary Lynne Van Poelgeest
WFIPP
President
Mrs Saartje Van Pottelberghe
Vrije Universtiteit Brussel, University Hospital Brussel, Centre for Medical Genetics
Psychologist, PhD researcher
