Mrs Sonja van Weely
ZonMw
Senipr programme manager
Mrs. Wendy van Zelst-Stams
Radboud University Medical Center
Clinical Geneticist
Miss Tatiana Varela
Universidade do Algarve
PhD student
Mrs Mary Vasseghi
Trinity College Dublin
PhD student School of Medicine
Mrs Lidewij Vat
the Synergist
Program Manager
Mr Vincent Vauchel
Ministère de la santé et de la prévention
Deputy Project Manager Rare Diseases Mission
Mrs Maria Rosaria Vavassori
AHC18+ e.V.
IAHCRC Data Manager
Ms Evgeniya Vedernikova
SMA Europe
Researcher
Mrs Gry Velvin
TRS, National Resource Center for Rare Diseases, Sunnaas Rehabilitation Hospital
Researchers /sosial worker
Ms Vandana Venkat
IPWSO
Policy and Research Intern
Dr. Pam Ventola
Yale University Child Study Center
Associate Professor
Mrs Mihaela Veringa
Sobi
Director Global Access Policy & Gvt. Affairs
Mr Alain Verloes
APHP Robert Debre
medical doctor
Mrs Chiara Vezzali
Fondazione Telethon ETS
Project Study Manager
Mr Ivan Viejo
Kyowa kirin
Market access director
Miss Juliette Vila Sinclair Spence
Acanthamoeba Keratitis Eye Foundation
Founder, CEO & Advocate
Nick Volkov
Lively
miss Larysa Voloshyna
All-Ukrainian Association for Helping the for Cystic Fibrosis
The president
Mrs Elizabeth Vroom
EURORDIS - Rare Diseases Europe
CEO Duchenne Parent Project NL
Ms Danica Vučić
National Organisation for Rare Diseases of Serbia (NORBS)
Help Line Manager
