Professor Ingolf Pernice
European CMT Federation
Professor at Humboldt-Universität zu Berlin
Miss Lise Pernin
EURORDIS-Rare Diseases Europe
Communications Junior Manager
Mrs Jenni Pesola
Norio – Centre of Rare Diseases
Planner
Mrs Brindusa Petrutescu
ASMR
MD
Mr Szymon Piatkowski
Saventic Foundation
Founder
Mr Thibaut Pichon
Banque Nationale de Données Maladies Rares – BNDMR (AP-HP)
Interoperability Project Manager
Mrs Mercè Piñero Vegas
Associació Española de Esclerodermia
Vocal
Ms. Natacha Pires
APBD Research Foundation
Special Projects Consultant
Mr Richard Pitt
Boehringer Ingelheim International GmbH
Patient Advocacy Relations Manager
Ms Inmaculada Placencia Porrero
European Commission
Senior Expert
Mrs Anna Pluzhnikova
Direction de la Santé
Coordinatrice Plan National Maladies Rares
Mrs Maryna Podgaina
National University of Pharmacy
Associate professor
Dr. Gábor Pogány
HUFERDIS
president
Mrs Anne-Claire Poinas
Norgine
Director
Mrs. Veronica Popa
EURORDIS- Rare Diseases Europe
Digital Patient Engagement Manager
Ms Jana Popova
EAMDA
Vice President
Mrs. Neringa Puidokiene
VASPVT under the Ministry of Health
Head of division
Mrs. Maria Puiu
Romanian National Alliance For Rare Diseases
Prof. Univ., MD, PhD
Mrs. Karen Quandt
Firefly Fund
RN, MSN
Ms Vinciane Quoidbach
European Brain Council
Research Project Manager
