Mrs Rose Okoma
Association AUX PAS DU COEUR
Founder
Mr Anders Olauson
Agrenska Foundation
Chairman
Dr Andrew Olaye
Orchard Therapeutics Ltd
Head of EMEA Market ACcess
Ms Iva Omrčen
National Organisation for Rare Diseases of Serbia (NORBS)
Vice-President
Ms Michela Onali
Gli Equilibristi HIBM
Patient Advocate
Mss Loes Oomen
Radboud University Medical Center
PhD student
Mr. Dr. C. Oosterwijk Cor Oosterwijk
VSOP - Patiëntenkoepel voor zeldzame en genetische aandoeningen
Director VSOP
Mr Thijs op de Weegh
Precision for Medicine
Director, Clinical Business Solutions
Mr Ken O'Reilly
Amryt Pharma
Ken O’Reilly Global Head Patient Advocacy and Government Affairs
Mr Stanislav Ostapenko
EURORDIS- Rare Diseases Europe
Communications Manager
Miss Andrea Osvoll
EURORDIS
Communications Junior Manager
Mrs Sarah Otmani
APHP / BNDMR
Project Manager
Mrs Lisbet Ottesen
The Danish Wilson Patient Association
Chair of The Wilson Patient Association DK
Mrs Laetitia Ouillade
AFM-Téléthon
Volunteer
Mrs Marie-Christine Ouillade
AFM TELETHON
AFM Board member
Ms Sanna Paasonen
Finnish Network for Rare Diseases
Patient Advocat
Mr Philippe Pakter
Stichting Pierre Robin Europe
Chairman
Mr Francis Pang
Orchard Therapeutics
VP Global Market Access
Mrs. Leena Panwala
INADcure Foundation
Executive Director
Dr Andri Papadopoulou
European Commission - DG Joint Research Centre
Scientific Officer
