Mrs Wiebke Papenthin
Morbus Wilson e.V., ERN Rare Liver Working Group Wilson
chairwoman
Dr Niraj Parajuli
Bir Hospital - Part of RDI CGN Panel of Experts
Clinician
Mr. Marek Parowicz
AHC18+ e. V.
President
Mrs. Bianca Paslak-Leptien
ACHSE e.V.
Communications Manager/Press Officer
Mrs. Marjon Pasmooij
Dutch Medicines Evaluation Board
Science Programme Manager
Dr Rachael Pattinson
Cardiff University
Research Associate
Dr Nabin Paudel
Retina International
Research and Innovation Manager
Mrs Margit Paul
Hepatitis Aid Austria / EUPATI Austria
EUPATI Austria Board Member
Ms Inger-Margrethe Stavdal Paulsen
The Norwegian Osteogenesis Imperfecta Association
Chair
Mr Stefano Pavanello
Unione Trapiantati Polmone Padova ODV
President and Volunteer
Mrs Sandra Pavlovic
EURORDIS- Rare Diseases Europe
RareConnect Manager
Mrs Stella Peckary
Österreichische Rett Syndrom Gesellschaft
Board Member
Dr. Elena Pedrini
Istituto Ortopedico Rizzoli
Biologist, BSc PhD
Mr Gilbert Peffer
Kubify
co-funder
Mrs Mariangela Pellegrini
ERN-EuroBloodNet
Educational & Patients Program Manager
Mr Eduard Pellicer Arasa
Sant Joan de Déu Hospital
Social Worker
Mrs Becky Pender
Rare Revolution Magazine
Team and Communities Associate
Mrs. Sara Pérez Martínez
Complutense University of Madrid
Professor, ePAG
Ms. Michela Perina
Airett
Physiotherapist
Ms Julie Pernet
EURORDIS - Rare Diseases Europe
EU Public Affairs Senior Manager
