Date & Time
Wednesday, June 29, 2022, 4:30 PM - 6:30 PM
Name
Track C, Session 2 Inequalities in accessing health and social care + Meet the Speakers
Speakers
Isabella Brambilla - Dravet Italia- ePAG EpiCARE- Dravet Syndrome European Federation
Dorica Dan - Romanian National Alliance for Rare Diseases
Julia Faulkner - EAT - Esophageal ATresia Global Support Groups
Wout Feitz - Radboudumc Amalia Children's Hospital
Encarna Guillén-Navarro - Hospital Clínico Universitario V. Arrixaca/IMIB-Arrixaca/UMU/CIBERER-ISCIII
Tony Holland - International Prader-Willi Syndrome Organisation
Andreas Rosenberger - Norwegian National Advisory Unit on Rare Disorders
Maria Montefusco - EURORDIS - Rare Diseases EuropeVirtual Session Link