Dorica Dan has a daughter of 37 years old, suffering from PWS. She is a psychologist and initiated RPWA (Romanian Prader Willi Association) in 2003, established RONARD (Romanian National Alliance for Rare Diseases) in 2007, ARCrare (Romanian Association for Rare Cancers) in 2011, and NoRo Center in 2011 in Zalau.
She is part of the board of EURORDIS- Rare Diseases Europe since 2007 and was a board member of IPWSO – International Prader Willi Syndrome Organization.
Dorica was part of the European Commission Expert Group on Rare Diseases (EUCERD/ CERD), a Work Package Leader of the EUCERD Joint Action for Rare Diseases (EJA), Work Package focusing on Specialized Social Services and Eurordis Europlan advisor. She is a member of the National Council for Rare Diseases, initiated and coordinates NoRo Center – a Center of Expertise for rare diseases, member of RareResourceNet – European Network of Resource Centers for rare diseases and the national network for congenital anomalies with/without intellectual disabilities called RO-NMCA-ID, which is a full member of ERN ITHACA. Since 2018 she is an Ashoka fellow, and she was a member of the Romanian Social and Economic Council until 2020. She is also part of the board of Romanian Coalition for Patients with Chronic Diseases – COPAC. She is organizing the RDSJ – Rare Diseases School for Journalists for 10 years and initiated an online radio for rare diseases with the main goal to promote the needs of patients with rare diseases to entire community and advocate for better access to care for people affected by rare diseases in Romania.