Date & Time
Tuesday, June 28, 2022, 11:00 AM - 1:00 PM
Name
Mobilising the Rare Disease Movement for Ukraine: EURORDIS and Our Allies’ response to the war in Ukraine
Speakers
Tetiana Kulesha - NGO "Rare Diseases of Ukraine"
Dupe Ajayi - Airbnb.org
Sadie Bynum - Airbnb.org
Adrian Goretzki - Healthcare Education Institute Foundation
Anastasiia Saliuk - EURORDIS-Rare Diseases Europe
Katarzyna Swieczkowska - Polish Assocciation for Persons with Intellectual Disability
Michael Wilbur - Eurordis
Iryna Mykychak - Ministry of Health of Ukraine
Helene Dollfus - ERN-EYE
Avril DALY - EURORDIS-Rare Disease Europe
Ruben Diaz - European Children's Hospitals OrganisationVirtual Session Link