Adrian Goretzki – founder and president of EDUinstitute.org foundation. Between 2010 and 2018 president of ‘Immunoprotect’ Association for Patients with Primary Immunodeficiencies. Between 2014 and 2016 member of the board of International Patient Organization for Primary Immunodeficiencies (IPOPI). Experienced patient advocate, awarded for his achievements with Luciano Vassali award in 2014 and the University of Silesia Rector’s Award in 2020. Lawyer, advisor, author of PatientAdvocacy.Academy - online video advocacy trainings for leaders of patient organizations operating in the area rare diseases. Patient with a rare disease himself.