Sofie Skoubo is a PhD student from Aarhus University, Public Health, and Rehabilitation Center for Neuromuscular Diseases. Her research is focused broadly on the use of telepresence robots for children and adolescents with neuromuscular diseases who have high school absence. Further, her focus is on inclusion, rights, and legislation in the school environment in the Scandinavian countries. Sofie was born with neuromuscular diseases; she advocates to help children with neuromuscular diseases, navigate the educational support system, drawing on her own experiences. Since 2019, Sofie has been working with telepresence robots for children with neuromuscular disease: first, in her master's thesis with a pilot project including three children; and later, as a project leader in the Neuromuscular Diseases Foundation in Denmark. In the “robot project,” she implemented twenty AV1 telepresence robots for children with neuromuscular disease in Denmark, during the COVID-19 pandemic. In 2022, she was enrolled at Aarhus University with the PhD project “My Avatar – equal mobility in Education for Children with neuromuscular diseases in Scandinavia through the Use of telepresence robots.” When Sofie is not working as a researcher, she uses a lot of time playing wheelchair rugby on the Danish national team, where she trains to be ready for the Paralympic games in Paris 2024: her second participation in the Paralympic games, the first time being in Tokyo.