
Welcome to this 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD) 2024, a fully hybrid conference taking place on 15 & 16 May 2024 online and at The Square in Brussels.
Leading, inspiring and engaging all stakeholders to take action, the Conference is an unrivalled opportunity to network and exchange invaluable knowledge with hundreds of stakeholders in the rare disease community – patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators and Member State representatives.
VIEW ON DEMAND
9:30 AM - 11:00 AM | Opening Plenary - on Main Stage | View Session | ||
11:30 AM - 12:30 PM | Posters Pitches | View Session | ||
2:00 PM - 3:30 PM | [PARALLEL SESSION] Revolutionising funding strategies for breakthrough therapies in rarer diseases | View Session | ||
2:00 PM - 3:30 PM | [PARALLEL SESSION] No Health without Mental Health! Let’s Co-create a Mentally Healthy Toolkit | View Session | ||
4:10 PM - 5:15 PM | Group Discussions | |||
5:15 PM - 6:00 PM | Daily news round up | View Session |
9:00 AM - 9:45 AM | Day 2 Plenary Session | View Session | ||
9:45 AM - 10:45 AM | Poster Awards and Poster Pitch | View Session | ||
11:30 AM - 1:00 PM | [PARALLEL SESSION] The path forward for equitable diagnosis | View Session | ||
11:30 AM - 1:00 PM | [PARALLEL SESSION] Achieving full reach: overcoming the last challenges to access highly specialised care | View Session | ||
2:00 PM - 3:30 PM | [PARALLEL SESSION] National Plans: exchanging best practices to forge a unified European response to rare disease | View Session | ||
2:00 PM - 3:30 PM | [PARALLEL SESSION] Innovative therapies, unequal access: bridging the gap for rare disease treatments | View Session | ||
4:15 PM - 4:45 PM | Highlights Hub | View Session | ||
4:45 PM - 5:30 PM | Closing plenary | View Session |
NOMINATE YOUR STAR!

About the Gala
Taking place each February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the outstanding achievements of people living with a rare disease, along with those who go an extra mile to make a difference to their lives.
The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication every day.
Nominations Now Open!
The 2024 edition of the awards was a great success, bringing together thousands of people in Brussels and online.
Don't miss your chance to nominate your star of the rare disease community, or enter yourself, for the 2025 EURORDIS Black Pearl Awards!

CHECK OUT OUR SPEAKERS!

Institute of Human Genetics and Genomic Medicine, Medical Faculty, RWTH Aachen University
Germany

Newcastle University Institute of Translational and Clinical Research
United Kingdom

Direction de la santé - Ministère de la Santé et de la Sécurité sociale
Luxembourg
Posters
Full Partners
Associate Partners
Media Partners
Outreach Committee
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Co-organised by
