Lucy McKay is a UK trained doctor and the CEO of Medics4RareDiseases. Lucy’s brother died before she was born from a rare condition. She grew up alongside a patient group, founded by her mum, that started life in Lucy’s family home. After studying Human Genetics at The University of Nottingham she went on to study medicine at Barts and The London School of Medicine and Dentistry in 2010. Where she first identified how medical education was contributing to the diagnostic odyssey and negative patient experiences. Lucy’s role as CEO combines her unique personal experiences with her medical training, in order to improve the lives of those living with rare diseases through medical education. Her other roles include member of the UK Government’s Department of Health and Social Care’s Rare Diseases Framework Forum and Steering Committee Member for Medscape’s Rare Diseases Learning Centre.