Virginie currently serves as the Chief Executive Officer of EURORDIS-Rare Diseases Europe. She has previously served as the organisation’s Scientific Director.
She received her PhD in Neurosciences from King’s College London, UK followed by several postdoctoral research projects at the Institute of Neurology, UCL, London. After leaving the lab, she worked for several research funding organisations including the National Institute for Health Research.
Upon joining EURORDIS as Scientific Director, she took the lead on project development and patient engagement in rare disease research projects representing the voice of rare disease patients. Virginie led the creation of the EURORDIS Winter School on Scientific Innovation and translational research, aimed at empowering people living with a rare disease to fight for their rights to a better and healthier future.
In January 2022, Virginie joined Illumina as Associate Director for Medical Affairs, Europe. Until joining EURORDIS, Virginie had been a member of the Diagnostic Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC), which coordinates a dedicated working group on real-world applications and technologies for newborn screening.