Date & Time
Friday, July 1, 2022, 4:00 PM - 5:30 PM
Name
Closing Plenary Session
Speakers
Milan Macek - National Coordination Centre for
Hans Kluge - WHO (World Health Organization) Regional Office to Europe
Adéla Odrihocká - Rare Diseases Czech Republic
Tamsin Rose - Tamarack
Oriana Sofia de Sousa - Youth Cancer Europe; Evita
Dorothea Dalig - DGA Interel/ Rare 2030 Young Citizen
Danielle Drachmann - Ketotic Hypoglycemia International
Elvira Martínez - Federación Española de Enfermedades Raras
Anna Arellanesová - Rare Diseases Czech Republic
Avril DALY - EURORDIS-Rare Disease Europe
Gerrit Heijkoop - LOE.tv
Avril Daly - EURORDIS - Rare Diseases Europe
Jakub Dvořáček - Ministry of Health of Czech RepublicVirtual Session Link