Adéla ODRIHOCKÁ is a translator and interpreter specializing in healthcare, medicine and pharmaceutical area.
Adéla became involved in patient advocacy after being diagnosed with a rare disease after 12
years of being undiagnosed and searching for a diagnosis. During her studies, she led
workshops for academic staff members to help improve study conditions for students with
chronic illnesses and to talk about accessible education in university settings. She has been an
active member of ČAVO (The Czech association for Rare diseases) since 2017 and the only
ambassador for her rare disease in the Czech Republic. In recent years, she has led many
chronic disease related workshops for diverse audiences (healthcare professionals, students,
etc.) not only in the Czech Republic, but also in France. She has also been part of The
Dysautonomia Project, aiming to educate healthcare professionals and patients. She was
invited as a speaker at the One World International Human Rights Documentary Film Festival
to raise awareness about invisible disabilities and the social challenges people with invisible
disabilities face. Last year, she shared her “diagnosis odyssey” story on Czech national
television. She has been part of the Eurordis - 30 million reasons for European action on rare
diseases campaign.