I coordinate the creation of RARE Revolution Magazine’s digital content, liaising with stakeholders from across the rare disease ecosystem. Alongside our core magazine and spotlight editions, our website offers a unique platform for people living with a rare disease (PLWRD) to share their stories.
RARE Revolution is a collaborative space for PLWRD, caregivers, advocates, charities and charity partners, healthcare professionals, researchers and industry experts. Through sharing their collective voices, we seek to inform, educate and empower the whole rare disease community.