Prof Anna Jansen is a paediatric neurologist at Antwerp University Hospital. Her clinical work focuses on rare neurogenetic disorders including tuberous sclerosis complex (TSC) and brain malformations. She runs a multidisciplinary TSC clinic and has participated in several clinical trials. Her clinical work is complemented by teaching in paediatric neurology and preventive medicine. She is involved in translational research on the genetics of brain development and in multi-stakeholder participatory research that focuses on empowering families living TSC. She co-led the TANDem project, an international participatory mobile-health project to empower families and individuals who live with TSC around the world. Prof Jansen is affiliated with the Translational Neurosciences Research Group at the University of Antwerp and with the Neurogenetics and Mental Health and Wellbeing Research Groups at Vrije Universiteit Brussel. Her work is supported by a Senior Clinical Investigator Fellowship from the Research Foundation Flanders (FWO). She heads the Advocacy and Collaboration Committee of the European Paediatric Neurology Society and serves as a scientific advisor to be-TSC, the Belgian TSC advocacy association.