Jean-Phillipe Plançon has been living with a rare peripheral neuropathy since 2000. He founded the French Association against Peripheral Neuropathies in 2006 and is co-founder of the French Alliance of Rare Peripheral Neuropathies Patients Associations. He is also vice-President of the Board of Directors of the Agence Nationale de sécurité du Médicament et des produits de santé (ANSM), and National advisor of the Rare Diseases French Alliance At the European level, he is the chairman of EPODIN, the European Patient Organisation for Dysimmune and Inflammatory Neuropathies. Graduated in the field of rare diseases, education, public health, sciences and health law, he also advocates at the national and European level to improve quality of life of patient within several expert working groups and to health policy makers.