Daniel de Vicente, with 20 years of experience in community pharmacy, holds a Postgraduate in Public Health, and in Management and Strategic Planning for non-profit entities. He is a Health Consultant and Project Manager specialist in rare diseases, PROMs PREMs, RWE, RWD and expert patient programmes. Additionally, he is the President and co-founder of the Association of Patients ASMD Spain, and holds positions as a member of the Board of Directors for EURORDIS and FEDER (Rare Diseases Spain). He is also the Research Liaison Officer for INPDA (International Niemann-Pick Alliance) Being both a rare disease patient and a pharmacist, Daniel has developed a wide perspective of rare diseases ecosystem