What was the Rare 2030 Foresight Study?
Supported by EU bodies, the Rare 2030 Foresight Study was a two-year project guiding a multi-stakeholder reflection on rare disease policy in Europe over the course of the next decade and beyond.
The Rare 2030 Foresight Study concluded with eight recommendations covering diagnosis, treatment, care, research, data, and European and national infrastructures. Together, these lay out the roadmap for the next ten years of rare disease policies, taking into account both current and future trends across science, politics, and society – to ensure that the future of the 30 million people living with a rare disease is not left to luck or chance.
RARE 2030 FORESIGHT STUDY VIDEO