33rd EURORDIS Round Table of Companies Workshop
Laying the ground for European Action on Rare DiseasesThe role of industry
27-28 April 2022 (14:00-18:00 CET), Online
Recent EURORDIS Round Table of Companies (ERTC) discussions placed an emphasis on the need for a new ecosystem in Europe that addresses unmet medical needs and ensures sustainability for healthcare systems. In a context of fast-evolving technological advances and scientific promises that have the potential to dramatically improve lives, persisting inequalities remain for the 30 million Europeans living with a rare disease for whom the absence of or lack of access to an approved treatment has yet to be addressed.
Building on previous advocacy milestones in rare diseases, this upcoming workshop will be an opportunity to reflect further on these persisting inequalities through focusing our discussion on key solutions:
Through these propositions, EURORDIS invites industry to think beyond the revision of the EU general pharmaceuticals legislation by supporting a coordinated and concerted European effort to achieve a renewed policy framework on rare diseases.
This workshop will provide valuable information to its participants with the following objectives:
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