Author First Name
Jess
Author Last Name
Knollys
Author Email
Name
Description
SAVE THE DATE! The next ECRD will be held on 2-4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe.
By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
With over 700 participants attending in 2024, the Conference represents an unrivalled opportunity to network and exchange invaluable insights within the rare disease community. Through collaborative efforts, these discussions culminate in clear policy recommendations that can influence both EU and national policies.
The 12th ECRD took place as a fully hybrid conference on 15 & 16 May 2024 online and in Brussels and culminated in the output of a co-created, open letter to EU Institutions and country leaders. To revisit the key messages and conclusions of ECRD 2024 and the pre-conference webinars, click on the button below to read our brand-new Executive Summary.
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe.
By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators and Member State representatives, EURORDIS harnesses the power of this extensive network to shape goal-driven rare disease policies of the future.
With over 700 participants attending in 2024, the Conference represents an unrivalled opportunity to network and exchange invaluable insights within the rare disease community. Through collaborative efforts, these discussions culminate in clear policy recommendations that can influence both EU and national policies.
The 12th ECRD took place as a fully hybrid conference on 15 & 16 May 2024 online and in Brussels and culminated in the output of a co-created, open letter to EU Institutions and country leaders. To revisit the key messages and conclusions of ECRD 2024 and the pre-conference webinars, click on the button below to read our brand-new Executive Summary.
Website
Category
Theme 1: Good health & well being
