We are pleased to host the EURORDIS Membership Meeting 2023 (EMM) in Stockholm, Sweden from Thursday, 25 May through Saturday, 27 May

The event will provide an engaging and lively discussion on the road towards a holistic approach to addressing the needs of people living with a rare disease and ensuring their full inclusion in society, with much missed in-person opportunities for exchange.

This year’s EMM comes at a critical time for Europe, as EU institutions revise milestone legislation for rare diseases – on pharmaceutics and paediatrics – and pave the way for new legislative frameworks, including the European Health Data Space and the European Strategy on Mental Health.

The Membership Meeting’s programme will focus on the most relevant and cutting-edge issues impacting the lives of the 30 million Europeans living with a rare disease and their families, including digital safety and literacy, mental well-being, the role of digital healthcare and associated opportunities and risks, and disability recognition.

Throughout the three-day programme, we will feature EMM’s hallmark Lifelong holistic approach and full inclusion in society, workshop and networking moderated sessions. 

Attendees will benefit from excellent networking opportunities and knowledge exchange with their peers. Learn more About the EURORDIS Membership Meeting


THURSDAY, 25th May
13:30 - 14:00 - Satellite Meetings Registration - Registration Area
14:00 - 18:00  - EMM 2023 Satellite Meetings
     1) Healthcare Digitalisation - Room T5
     2) Mental Wellbeing - Room T2 

FRIDAY, 26th May 
09:00 - 09:30 - Registration
09:30 - 11:00 - Plenary - Room T1 
11:00 - 11:30 - Coffee Break 
11:30 - 13:00 - Networking Sessions 
  1) National actions which had an impact - Room T5
  2) What makes a difference to achieve lifelong integrated care - Room T1
  3) How is my/my family member’s Rare Disease impacting my mental health - Room T6
  4) What barriers do we face while living with a rare disease and visible or invisible disability? - Room T2
13:00 - 14:30 - Networking Lunch 
14:30 - 17:30 - Workshops
  1) Living with a rare disease in childhood - Room T6 
  2) Living with a rare disease in adolescence - Room T1
  3) Adult life with a rare disease - Room T5
  4) Ageing with a rare disease - Room T2
16:00 - 16:30 - Coffee break

19:00 - Welcome dinner at Scandic Continental (for registered participants)

SATURDAY, 27th May
9:30 - 12:30 - Workshops - Same as Friday
11:00 - 11:30 - Coffee Break
12:30 - 14:00 - Lunch


EMM 2023 is being held at the Stockholmsmässan centre in Stockholm. You can find more information about the venue on the Stockholmsmässan website.  

In the Practical Information Guide, you can find more information including directions on how to reach the venue.

You can view the venue here: 360° virtual tour

If you have any questions about the event and you are already on-site, please go to the welcome desk and our colleagues would be able to assist you. Otherwise email Martina Bergna at martina.bergna@eurordis.org.