Full Name
Ms Sandra Courbier
Job Title
Social Research Director
Company/Organisation
EURORDIS - Rare Diseases Europe
Speaker Bio
Sandra Courbier joined EURORDIS in 2015. She is responsible for consulting patients and their representatives to support advocacy and policy-making activities at EURORDIS. Sandra Courbier has more than 10 years of experience in gathering citizens’ opinions
and perspectives, co-creation and participatory processes to develop sound policies and ensure that they meet actual citizens’ needs. She holds a master in survey methodology applied to political science and sociology from the Institut d’Etudes politiques de Grenoble. Prior to joining EURORDIS, Sandra worked for the French Governmental information service, obtaining a broad experience of health-related surveys and studies, public communication and public affairs. While working for TNS Opinion in Brussels, the company in charge of the Eurobarometer, she also gained in depth knowledge on international survey research.

Within EURORDIS, she has initiated and implemented the Rare Barometer programme which has now become a go-to resource on rare disease patient perspectives on topics that concerns them. She set up the Rare Barometer programme survey panel counting now over 15,000 individual patients that are actively involved in sharing their experiences through the panel.
Sandra Courbier