Nick has worked at Genetic Alliance UK - the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK - for 15 years. Genetic Alliance UK advocates for fast and accurate diagnosis, good quality care and access to the best treatments. In 2011 Genetic Alliance UK re-launched SWAN UK, the support network for families with children affected by undiagnosed genetic conditions. Nick leads the policy team, with team members based in England, Wales and Scotland. The team focuses on ensuring the voice of people living with genetic and/or rare conditions is heard by policy makers across a wide range of topics, including diagnosis, coordination of care, regulation of research and regulation of innovative medicines, and more. Genetic Alliance UK works with parliamentarians across the UK to provide the secretariat for cross party groups to bring our community to decision-makers. Nick also co-chairs Genomics England’s Communicating Results Working Group on the Generation Study; is a member of the UK National Screening Committee’s Blood Spot Task Group; and is a member of the Screen4Care Forum on Newborn Screening.